8th May 2022, World Thalassemia Day is an opportunity to draw awareness towards Thalassemia Major, a deadly blood disorder. On this day we have launched the #DekhLengeThalassemiaKo challenge to create awareness about Thalassemia and the need to get a Thalassemia test done so that our future generations live a healthy and happy life.

 

This campaign is a critical step towards our ultimate goal, Thalassemia Mukt Bharat which was our late founder, Mr. Partth Thakur’s, vision. This can only happen by timely and wide-scale testing for thalassemia.

 

Your donation and support is crucial towards helping us save lives through ‘Thalassemai Mukt Bharat’ mission.

You can donate by simply clicking on this link : https://bit.ly/letsdefeatThalassemiatogether

 

The amount raised will support Thalassemia Screening Test (HPLC) across 10 cities with institutions, companies, production houses, banks, and offices, with a target of almost 3200 eligible bachelors and recently married couples to create awareness and counsel them equally.

*As per the requirement of 100 children for their medical requirements and 1000 couples from low income groups for their Thalassemia Testing is as follows:

1) 6 months Desferal Requirement for 100 children

-1 box of Desferal = INR 1700/-

-3 boxes per month per child = INR 5100/-

-INR 5100/- per child x 100 children = INR 5,10,000/-

-INR 5,10,000/- x 6 months = INR 30,60,000/-

2) Thalassemia Test cost for 1000 couples

-Subsidized Test cost for one person- INR 500/-

-INR 500/- x 2000 persons = INR 10,00,000/-

During the unprecedented times of the pandemic, we must acknowledge our privilege and support them as they need us now more than ever. We appeal to your humanity to support our brave warriors in getting their medicines and ensuring their health, and at the same time working towards a on this #ThalassemiaMuktBharat on this #WorldThalassemiaDay.

*Approximate break up of INR 5000 cost
NOTE: Please note that Blood is Nationally FREE. There are no Processing Charges for Thalassemia. However below are the other crucial expenses that need to be covered.
1. NAT Test – Nucleic Acid Amplification Testing (NAT) is a highly sensitive method of testing blood that is used to detect the Hepatitis C virus (HCV), Human Immunodeficiency Virus (HIV-1) and West Nile Virus (WNV) in blood. – The cost (Depends State to State) but on average, it is 1500 per bag. Hence, keeping the above scenario in mind, it is 3000INR per month. [American Journal of Microbiology generally reports the cost of this assay (including technician time and equipment) to be $14 to $49 per test.]

 

2. CBC Test – CBC stands for Complete Blood cell Count, which is a recommended blood test that a Thalassemia warrior must undertake at the time of every transfusion. The test is usually priced at 300/- INR. Hence, keeping the above scenario in mind, it is 600INR per month.

 

3. Medical Usables – Basic essentials such as Vein Flow/Intragate, Syringe, Vein-o-Fix, Lasix/Distil Water, and Blood Administration Set. These usables are required at the time of every transfusion and have a cumulative cost of 700INR per transfusion. Hence, keeping the above scenario in mind, it is 1400INR per month.
3000 + 600 + 1400 = 5000/-

Over and above these costs there are individual or incidental expenses that patients incur such as they travel to the hospital/blood bank and basic food. In case the blood (from the blood bank) is not leuko-depleted then our warriors need to use an LR-Filter (usable) which is another 660/- INR per filter. Other miscellaneous costs may differ from city to city.

Tests & Usables

* Please note that Blood is Nationally FREE. There are no Processing Charges for Thalassemia.

NAT Test

Nucleic Acid Amplification Testing (NAT) is a highly sensitive method of testing blood that is used to detect the Hepatitis C virus (HCV), Human Immunodeficiency Virus (HIV-1) and West Nile Virus (WNV) in blood. - The cost (Depends State to State) but on average, it is 1500 per bag. Hence, keeping the above scenario in mind, it is 3000INR per month. [American Journal of Microbiology generally reports the cost of this assay (including technician time and equipment) to be $14 to $49 per test.]

CBC Test

CBC stands for Complete Blood cell Count, which is a recommended mened blood test that a Thalassemia warrior must undertake at the time of every transfusion. The test is usually priced at 300/- INR. Hence, keeping the above scenario in mind, it is 600INR per month.

Medical Usables

Basic essentials such as Vein Flow/Intragate, Syringe, Vein-o-Fix, Lasix/Distil Water, and Blood Administration Set. These usables are required at the time of every transfusion and have a cumulative cost of 700 INR per transfusion. Hence, keeping the above scenario in mind, it is 1400 INR per month.

Total amount = 3000 + 600 + 1400 = 5000/- INR

 

Over and above these costs there are individual or incidental expenses that patients incur such as they travel to the hospital/blood bank and basic food. In case the blood (from the blood bank) is not leuko-depleted then our warriors need to use an LR-Filter (usable) which is another 660/- INR per filter. Other miscellaneous costs may differ from city to city.

Checkout our Program Updates on Instagram Profile

How can you help us?

Donate to TWF

The fight against Thalassemia Major is an expensive one. Every contribution of Rs. 700 can gift a child a blood filter for their next blood transfusion.

Adopt a wish

We fulfill wishes of Thalassemia Major and Leukaemia Fighters and give them experiences which they can always cherish. You can adopt one today!